SchmetterlingsKIDS Geocoin - Max RT 211
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Owner:
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nina_max
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Released:
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Wednesday, August 19, 2015
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Origin:
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Thüringen, Germany
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Recently Spotted:
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In Voyager
This is not collectible.
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This Coin should generate attention for this disease:
Epidermolysis bullosa (EB) is a group of inherited connective tissue diseases that cause blisters in the skin and mucosal membranes, with an incidence of 20 newborns per 1 million born with it in the United States. [1]It is a result of a defect in anchoring between the epidermis and dermis, resulting in friction and skin fragility. Its severity ranges from mild to lethal.
The condition was brought to public attention in 2004 in the UK through the Channel 4 documentary The Boy Whose Skin Fell Off, chronicling the life and death of Jonny Kennedy, an Englishman with EB.[2] In the United States, the same could be said of the HBO documentary My Flesh and Blood from 2003.[citation needed]
"Butterfly Children" (in german: Schmetterling Kids) is a term often used to describe younger patients (because the skin is said to be as fragile as a butterfly’s wings),[3] "Cotton Wool Babies",[4][5] or (in South America) as "Crystal Skin Children".[6]
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